Cancer and People with Learning Disabilities: The Evidence from Published Studies and Experiences from Cancer Services


Publisher: British Institute of Learning Disabilities (15 Dec 2003)
Cancer is a key health issue but we know very little about cancer in people with learning disabilities. This BILD report, commissioned by the Department of Health, explores:

What are the potential genetic, environmental and personal risks that people with learning disabilities may be exposed to?
How do we make health education programmes accessible?
How can people with learning disabilities best benefit from the complex cancer treatments now available?
How can we improve rates of early diagnosis, as people with learning disabilities may not be able to report their symptoms?
If you would like to borrow this book, please e-mail library@enable.org.uk 

Cerebral Palsy 
by Ruth Bjorklund

A colourful book for older children and teenagers. It gives a detailed explanation of what cerebral palsy is and the history of how the condition has been viewed and treated. Great for someone who wants a more in-depth look at cerebral palsy. 

To borrow this book please contact ascs@capability-scotland.org.uk 

Voluntary Organisations and Social Policy in Britain: Perspectives on Change and Choice

by Margaret Harris (Editor), Colin Rochester (Editor)

This text brings together contributions by British experts to examine the shifting relationship between welfare policy and the voluntary sector. Taking into account the fundamental reassessment of the role of the state in welfare and the funding and organization of the delivery of health care, social services, housing and so on, it asks what the implications are for voluntary sector organzations and in what specific ways they are responding to their new expanded role.

If you would like to borrow this book, please e-mail library@enable.org.uk 

 

Sleep Better!: Guide to Improving Sleep for Children with Special Needs (Paperback)

This work offers step-by-step instructions for helping children with disabilities get the rest they need. For problems ranging from bedtime tantrums to night waking, parents and caregivers will find a variety of tested techniques that have already helped other children with special needs.

If you would like to borrow this book, please e-mail library@enable.org.uk 

Ethnicity, Disability And Chronic Illness (Race, Health & Social Care) (Paperback)
Waqar Ahmad


This book brings together significant emerging work on ethnicity, disability, chronic illness and caring by leading researchers in the field. They explore the experience of minority ethnic people, and examine: the conceptualization of disability and chronic illness and the implications of particular definitions; the everyday living with a disability or chronic ill health; and, the role of services in providing support to disabled people and carers. In theoretical terms the book problematizes distinctions between users and carers, between the social model of disability and more individual medical discourses, and argues that chronic illness and impairment can be made sense of only within personal, social and citizenship contexts; and ethnicity and racism remain important aspects of this wider context for minority ethnic people with impairment or chronic ill health.

In terms of policy and practice, this volume highlights the continued problems experienced by minority ethnic disabled and chronically ill people and their families; and it shows that, although many of these users’ experiences are shared with white users, the intensity and persistence of disadvantage that are faced by minority ethnic users can only be understood by reference to their racialized worlds. This book offers both theoretical advancement and practice relevance in the field, and is essential reading for students, teachers and researchers in health and community care, disability studies, social work, nursing, public health, social policy and sociology. The book will also be of value to practitioners and policy makers in health and social services.

If you would like to borrow this book, please e-mail library@enable.org.uk

This Side of Heaven

Laura Marney

Contemporary writer addresses real life issues through the use of fiction.

Artlink Commissioned the author Laura Marney to talk with parents, to find out what moving out of the family home meant for them. The idea was that Laura would write a piece of fiction that could be used as set of instructions for social workers and care staff working with families of people with profound and multiple learning disabilities. PAMIS families were involved in this project and the story is either available directly from Artlink, 13a Spittal Street, Edinburgh EH3 9DY, Tele. 0131 229 3555. email info@artlinkedinburgh.co.uk.or there are copies available to borrow from the PAMIS library. Email: j.t.taylor@dundee.ac.uk 

Different Croaks for Different Folks: All About Children with Special Learning Needs (Hardcover)

by Midori Ochiai (Author), Shinya Miyamoto (Author), Hiroko Fujiwara (Illustrator),


This engaging colour illustrated book explores the difficulties faced by ’frogs with a different croak’. Aimed at children with autism and related spectrum conditions, Teacher Toad’s lessons pick up on social and physical difficulties and the kind of behaviours that can get young frogs into trouble. Each lesson gives practical advice on issues covering everything from hard-to-break habits to physical coordination difficulties. Without using ’labels’, Midori Ochiai writes about a range of conditions in a child-friendly, non-threatening way that encourages a positive and fun approach to understanding, accepting and accommodating difference. A detailed appendix covers the conditions from a medical perspective. Ideal for reading with children, this book will be helpful to parents and professional.

If you would like to borrow this book please e-mail

library@enable.org.uk 
 

Creative Conversations (DVD)
Communicating with people with profound learning disabilities

Phoebe Caldwell with Pene Stevens

Intensive Interaction is probably the most positive and accessible way of getting in touch with and empowering people who may seem locked in their ’inner world’. This DVD training resource seeks to bridge the gap in the range of currently available material on the use of Intensive Interaction. 

This DVD shows how Intensive Interaction is used to find ways of communicating with people who have multiple and profound learning disabilites, enabling them to expess their feelings as well as their needs. It shows care staff and family carers learning to use a number of simple Intensive Interaction techniques with four adults, under the guidance of Phoebe Caldwell. Explanatory discussion between Phoebe Caldwell and Pene Stevens, a clinical nurse specialist in the field, and from the carers themselves supplement these powerful films.

This resource is for anyone involved in supporting a person with severe and profound learning disabilities, helping them to establish ’two-way’ creative conversations that have meaning for the individual. The video comes with guidance notes covering the main features of Intensive Interaction.

If you would like to borrow this DVD please e-mail library@enable.org.uk

Learning the Language (DVD)

Building on Phoebe Caldwell’s previous bestselling books, this DVD resource demonstrates the techniques carers can use to build positive relationships with people with severe learning disabilities and challenging behaviour. Phoebe uses a combined approach of using a person’s own ‘language’ to communicate with them (Intensive Interaction) while also trying to reduce the stress they experience by an exploration of their sensory reality and hyper-sensitivities.

The DVD shows:
• Phoebe establishing contact for the first time with a man with severe autistic spectrum disorder
• support workers demonstrating how they put the techniques into action in their daily routines
• how new ways of communicating can make a difference to the lives of all concerned.


If you would like to borrow this DVD please contact library@enable.org.uk

Learning Disabilities: Towards Inclusion (Paperback)

This is a textbook for students of learning disabilities covering a wide variety of topics. It is relevant not only for nursing courses, but also for care workers, OTs, and other professional and non-professional carers. The new edition has been completely updated and includes the latest evidence for practice. There are new chapters which means the book provides comprehensive coverage of learning disablities throughout a person’s life. There are also new contributors, including people with learning disabilities. Each chapter is supported by information on further reading and other resources.

If you would like to borrow this book, please e-mail library@enable.org.uk 

 

Just Say Know!

This book explores the victimisation of people with disabilities and helps reduce the risk of sexual assault. The ring of safety presents the skills to teach people with disabilities to enable them to protect themselves. If you would like to borrow this book please e-mail info@enable.org.uk